http://www.rarecancers.eu/ Nearly half a million Europeans live with a rare cancer. Despite the rarity of each individual cancer type, rare cancers represent in total about 20% of all cancer cases, including all cancers in children. Rare cancers are classified in the group of rare diseases which is defined in the European Union as diseases with a prevalence of fewer than 5 cases out of a population of 10,000. As such, patients with rare cancers are faced with the same challenges as other patients living with a rare disease, such as lack of information, inefficient detection and practical obstacles to treatment and care, just because their condition is rare. Against this background, the European Action Against Rare Cancers welcomes new policy initiatives, such as the European Commission's Communication on Cancer. Within the framework of this and other already existing policy initiatives, including the European Commission's Communication and the Council Recommendation on Rare Diseases, we urge European policy-makers to continue to initiate targeted actions and policies that will help raise awareness and address the challenges faced by patients with rare cancers. Reference: RARECARE Please join us by signing the Call to Action Against Rare Cancers. en SPIP - www.spip.net http://www.rarecancers.eu/?New-EU-initiative-on-rare-diseases http://www.rarecancers.eu/?New-EU-initiative-on-rare-diseases 2009-12-09T13:13:15Z text/html en anesofie European Action Against Rare Cancers welcomes the European Commission's recent decision to establish a European Committee of Experts on Rare Diseases which will assist in the formulation and implementation of European Union activities in the field of rare diseases. European Action Against Rare Cancers strongly supports political initiatives that encourage more effective approaches to tackling rare diseases, including rare cancers, in Europe. We recognize the new Committee of Experts on (...) - <a href="http://www.rarecancers.eu/?-News-" rel="directory">5. News</a> <div class='rss_texte'><p><strong>European Action Against Rare Cancers</strong> welcomes the European Commission's recent decision to establish a European Committee of Experts on Rare Diseases which will assist in the formulation and implementation of European Union activities in the field of rare diseases.</p> <p>European Action Against Rare Cancers strongly supports political initiatives that encourage more effective approaches to tackling rare diseases, including rare cancers, in Europe.</p> <p>We recognize the new Committee of Experts on Rare Diseases as an important step towards promoting more fairness in rare diseases care across Europe, as it will be an instrument to help coordinate actions and exchange best practices, thus maximising the limited resources available. As such, we acknowledge the establishment of the Committee as being in line with the objectives of our <strong><a href='http://www.rarecancers.eu/?-Full-text-' class='spip_in'>Call to Action</a></strong> and the <strong><a href='http://www.rarecancers.eu/IMG/pdf/ESMO_Rare_Cancers_RECOMMENDATIONS_FINAL.pdf' class='spip_in'>Consensus Recommendations</a></strong> which call for increased coordination and more involvement of all relevant stakeholders in political and practical decisions with an impact on rare cancer care.</p> <p>For more information about the European Committee of Experts on Rare diseases, please see: <a href='http://ec.europa.eu/health/ph_threats/non_com/rare_diseases_en.htm' class='spip_out' rel='nofollow'>http://ec.europa.eu/health/ph_threa...</a></p></div> http://www.rarecancers.eu/?8-July-2009 http://www.rarecancers.eu/?8-July-2009 2009-07-08T14:09:00Z text/html en francesco 2 weeks into the campaign we are happy to note that we have already reached 230 signatures supporting the Call to Action Against Rare Cancers. We greatly appreciate all the positive responses to our new initiative – it is a very encouraging start! - <a href="http://www.rarecancers.eu/?-News-" rel="directory">5. News</a> <div class='rss_texte'><p>2 weeks into the campaign we are happy to note that we have already reached 230 signatures supporting the Call to Action Against Rare Cancers. We greatly appreciate <u>all</u> the positive responses to our new initiative – it is a very encouraging start!</p></div> http://www.rarecancers.eu/?24-June-2009 http://www.rarecancers.eu/?24-June-2009 2009-06-24T14:06:00Z text/html en francesco European Action Against Rare Cancers was launched on 24 June 2009 to coincide with the publication of the European Commission's Communication on Cancer. The new campaign urges European policy-makers to prioritise better treatment and care for patients with rare cancers within the framework of the new Commission Communication on cancer and other recent policy initiatives such as the Council Recommendation on Rare Diseases. Read more (...) - <a href="http://www.rarecancers.eu/?-News-" rel="directory">5. News</a> <div class='rss_texte'><p>European Action Against Rare Cancers was launched on 24 June 2009 to coincide with the publication of the European Commission's Communication on Cancer. The new campaign urges European policy-makers to prioritise better treatment and care for patients with rare cancers within the framework of the new Commission Communication on cancer and other recent policy initiatives such as the Council Recommendation on Rare Diseases. <strong><a href='http://www.rarecancers.eu/IMG/pdf/Rare_cancers_press_release_24_06.pdf' class='spip_in'>Read more »</a></strong></p></div> http://www.rarecancers.eu/?Call-to-Action-Against-Rare http://www.rarecancers.eu/?Call-to-Action-Against-Rare 2009-06-20T16:16:00Z text/html en francesco - <a href="http://www.rarecancers.eu/?-Call-to-Action-" rel="directory">2. Call to Action</a>