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EU initiatives

Cancer and rare diseases have been on the EU political agenda in recent years. Here we list a number of initiatives focused on these disease areas.

Policy initiatives on rare diseases/rare cancers:

  • European Commission Communication on Rare Diseases: Europe’s Challenges
  • Council Recommendation on an Action in the field of Rare Diseases
  • Community action programme on rare diseases
  • High Level Pharmaceutical Forum’s guiding principles on improving access to orphan drugs to all citizens in Europe
  • EU Orphan Drug Regulation
  • RARECARE (Surveillance of rare cancers in Europe), including definition of rare cancers and list of rare cancers
  • EU Rare Diseases Task Force
  • Provisions on rare diseases of the Commission’s proposal for a Directive on the Application of Patients’ Rights in Cross-border Healthcare and the European Parliament’s report on the issue

Policy initiatives on cancer/promoting health:

  • European Commission Communication on Action Against Cancer: European Partnership
  • European Partnership Action Against Cancer
  • European Parliament Resolution on Combating Cancer in the Enlarged European Union
  • Health Council Conclusions during the Slovenian Presidency (Jan – Jun 2008) on Reducing the Burden of Cancer
  • Council Recommendation on Cancer Screening in cervical, breast and colorectal cancer
  • European Commission’s White Paper Together for Health: A Strategic Approach for the EU 2008-2013
  • 2nd programme on Community action in the field of health
  • Seventh EU Research Framework Programme 2007-2013 (FP7)
2. Call to Action

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We welcome requests for permission to reprint or translate the information on this website, including the Call to Action Against Rare Cancers, for non-commercial use. However, the content, layout and logo of the website may not be copied without attribution to the campaign, and no modifications of the content, layout or logo are permitted. The cooperating organisations behind this campaign have made every effort to provide accurate information on this website. However, the cooperating organisations and corporate supporters accept no liability for any inaccuracies or omissions, nor can they accept liability for any loss or damage resulting from any inaccuracy in this information or third party information such as details on websites to which we link. The information contained on this website is for educational purposes only. For individual medical care and advice about specific conditions, please contact a doctor.